Breaking the Silence recap

On April 24th Life Matters hosted our Breaking the Silence event. We want to extend a huge thanks to all those who attended and especially to our panelists: Maria Dillon, Abigail Clark, James Sutherland, Tiana Mihere, Hahna Briggs and Jane Stevens.

Each of our amazing panelists shared powerful stories of personal loss and their own experiences navigating the Mental Health system. What emerged throughout the evening were some common threads which tie these stories together. These same threads are woven through the stories of the attendees who were brave enough to speak at the event, and in the results of our recent online survey. The survey invited members of the public to share their own experiences of the Mental Health system so we can ensure they reach the Mental Health Inquiry panel. We received over 500 submissions and the results, while unsurprising, are harrowing.

By collating this information we are working to identify what these frayed ends look like in the hope that we can stop vulnerable people from falling through the cracks.

Difficulty accessing services

By far the biggest hurdle to getting care is having the concerns for yourself or your loved-one taken seriously, quickly. Again and again we have received reports of 3 month waiting lists for psychiatric assessment, “not enough beds” available in crisis wards, people turned away because their mental-state or destructive behaviours are not being deemed “urgent” enough and because they do not meet the “criteria”.  It seems that the system is set up to provide care only in the most urgent circumstances, and help is not available to those who are not immediately suicidal. We need to be helping people before they get to that point.

In the same vein, many people report being discharged before they were ready, when they still felt they posed a threat to themselves or others. Again and again we hear stories of people turned away from Mental Health services in times of crisis and, feeling they have no other option, taking their own lives.

Cost is also a barrier to a huge amount of people, who, having been given 6+ weeks to see a psychiatrist in the public system, have no choice but to wait. We have received feedback from people who did get appropriate care privately, thankful that they had the funds and resources to access the support that saved their lives.

Yet another barrier to help is drug-use or addiction. In many cases, if a suicidal person is using drugs, the Mental Health department will refuse to help, insisting they seek help for their drug use. If this is not viable or realistic, addiction services will not help them either, leading to them being bounced back and forth between services and too easily falling through the cracks.

Access to services is difficult enough but it is important to acknowledge that for marginalised groups the difficulties are compounded. Some of these groups include our youth, men, Maori and the LGBTQ+ community, who all face unique struggles along the path to mental wellness.

Lack of compassion

Judgemental, demeaning, dismissive, isolating, cold, clinical, unhelpful and unwilling to listen to family members; just some of the words used to describe encounters with the Mental Health system. Many respondents also acknowledge that Mental Health professionals are often underpaid and overworked, struggling on the frontline of a much larger battle. It is worth noting that there is also a lot of praise for those working within the system, but the callousness of the system itself leads to huge pressures on staff. It goes to show that this issue runs deep, and sees an unhealthy culture perpetuating unhealthy outcomes.

Lack of follow-up

Too often, after seeing a health professional or being discharged from a ward, people are left to their own devices. Time and time again, people have reported being told they would receive a phone call or visit from a professional checking in on their progress, but these phone calls/visits never come. At a time where wrap-around support is crucial to the ongoing wellbeing of the patient, it just isn’t there.

There is also inadequate access to respite facilities and, on occasion, service users have been discharged with no place to go. If a patient is discharged into the care of family, it is unlikely that the family with receive any ongoing support. They are left concerned and afraid, with the huge responsibility to save the life of their loved one.

Inadequate support for families and loved ones

After a suicide, comes grief. Huge, monumental, incomprehensible grief. While navigating this grief a family is also then confronted by the vicious bureaucratic realities of death: funeral expenses, tying up loose ends, debt collection agencies, legal matters and, too often, questions of culpability. The system provides no support or guidance at this point, and in some cases, isolate the family entirely, refusing accountability and silencing the family’s concerns.

Here at Life Matters we believe that legal support should be provided, free-of-charge, to families bereaved by suicide. Families mourning the loss of a loved one should not have to fight so hard for justice. Not alone.

Stigma

Stigma surrounding suicide and mental illness is pervasive and serves to bolster all these barriers to help. Seeking help can be difficult for anybody, and because our society views mental illness through the lens of stigma, many people may be reluctant to receive a diagnosis which could lead to the help they need.

While our youth have access to counselling through school, there is the perception among them that this is not confidential, as school counsellors have been known to pass information forward to teachers. While we may be able to understand the reasoning for this, it is actually likely that it will prevent some kids from seeking the help they need. In some schools, there is little discretion, making it obvious that a child has an appointment. For this reason, many kids are reluctant to seek help when they need it because they don’t want others finding out. This shows how stigma itself acts as a barrier to support; we need to change the discourse and shift the message; It is okay to not be okay.

We should be committed to ending the stigma surrounding suicide and mental illness. If we, as a society, can talk loudly about these issues that affect so many of us, then these barriers to support can be broken down.

 

Remember to look after yourself and loved ones. Use the helplines and ask for help from services. Contact us if you struggle to access help or need support in the aftermath.

We encourage everyone to contribute to the Mental Health and Addictions Inquiry and to connect with the panel if they come to a town near you. You can make an online submission or go to a public meeting. All information can be found on this website. https://www.mentalhealth.inquiry.govt.nz/

 

Need to talk? Free call or text 1737 any time for support from a trained counsellor

Lifeline – 0800 543 354 (0800 LIFELINE) or free text 4357 (HELP)

Suicide Crisis Helpline – 0508 828 865 (0508 TAUTOKO)

Healthline – 0800 611 116

Samaritans – 0800 726 666

A letter to my brother

Sometimes, it’s easier to write my feelings down than to speak the words aloud. When I’m really struggling with my grief, I turn to my journal, and let the ink flow from my pen and the sadness flow from my heart. It’s cathartic in a way, to let it all out.

If there are things you are still struggling to reconcile about your loved one’s death, it might help to write them a letter. Here’s one I wrote one year after my brother’s death. On anniversaries and his birthdays, I write John letters, as if he is in a faraway country, and can still read them. It helps.

Dear John,

It has been 365 days since you died, 371 days since I last talked to you, 414 days since I last saw your cheeky smile and it feels like a lifetime. Words usually come easily to me, but I couldn’t speak at your funeral and I’ve struggled since to verbalise what you meant to me – what I wish I’d said to you before you went. My hands are shaking as I write this now, but it needs to be done.

John, you were my brother, my confidant, my best friend. We fought, squabbled and terrorised each other as children – remember the time I nearly dropped a rocking horse on you? But we also had the most brilliant of times – camping out in the tree house, cycling around the farm, taking on the rest of the ravening horde (our other siblings), and cooking up a storm with our cake competitions. You were my partner in crime and together we were unstoppable – the A team. I honestly can’t think of a bad thing to say about you, perhaps other than the fact that you loved to dob me in at the dinner table, slyly asking me (in front of our sharp-eared father) about my human evolution lessons in biology, or whether I had ever drunk before in my life. It was infuriating, but infuriatingly hilarious nonetheless.

The summer before we left for university remains the best time of my life. Cycling through the Karangahake Gorge in the brilliant sunshine, sneaking you the odd milkshake at work, diving into the Ohinemuri to cool off after a taxing day of rolling ice-creams and directing lost cyclists at the café – it was sun-speckled bliss. That was the summer you introduced me to The Office – we’d sit, crowded around our antique computer, almost crying with laughter at Michael’s hijinks.

And then you moved to Dunedin with me. Flatting with you was hilarious – although your cooking left a lot to be desired, I could always rely on you to have at least half a cake or a pack of doughnuts floating around. Even when you were beginning to slip away, you were still unfailingly kind and thoughtful. I’d phone you up at three in the morning, after a night out with my pals and rather tipsily ask you to come pick me up. Without complaining, you’d appear twenty minutes later, skateboard under your arm, and sleep in your eyes. You’d deposit me on your skateboard and tow me home – with a cheeky stop off at McDonalds on the way home for a McFlurry and a packet of fries.

You know what they all say – grief comes in waves, and I let it wash over me to the point where I’m struggling to breathe, suffocating in sadness. I’m terrified of losing more of you – of forgetting your slightly crooked front teeth, your wide flat fingernails, the curious way you’d lope around the house, grinning sideways at me as you’d impersonate John Cleese from The Ministry of Silly Walks. You taught me to be kind – to care for the outsider, to laugh often and without embarrassment, to find hilarity in the mundane, to poke fun at oneself with abandon. I’ve never really been certain of anything in my life – including what I believe of the hereafter. But if there is even the slightest chance that I can see you again, I’ll put aside all my cynicism, scepticism, and fear and hold onto that fragment of hope. I love you,

Jean

Let’s start the conversation now

Kia ora. My name is Jean and I’ve been involved with Life Matters Suicide Prevention Trust for a couple of years. I’d like to begin this blog by telling you a story about me and my brother John, who died by suicide three years ago.

I’m the oldest of nine children – Jean, John, Andrew, Will, Jill, Lucy, Peter, Rebecca and Jack. Together with my parents, we have enough kids for a soccer team, almost enough for five-aside rugby, and more than enough for a nervous breakdown.

My childhood was messy, chaotic, and full of love. I had my usual teenage angst, and rebellious phase, but nothing serious had ever really happened. I hadn’t known real sadness, depression or anxiety. I hadn’t yet been touched by suicide.

Naturally, I was always very protective of my brothers and sisters. That’s not to say I didn’t tease them. On my little brother Will’s first day at school, I convinced him that a tube of wasabi I had was green ice-cream. He ate a whole teaspoon and began to bawl. I ran away. Obviously, this was not my finest hour. But when it really mattered, we stuck together. Playground skirmishes would sometimes escalate into full-on clan wars if someone dared to pick a fight with one of my siblings. And when my brother John began to show signs of depression, I was worried.

Three years ago, I was a second year student at Otago University. I was living in a flat in North East Valley, and I thought it would be great fun if my brother John – the next one closest in age – would come flat with me. So he moved down, and for awhile, it was great fun. We would go to parties together, and he would put me on his skateboard, and tow me home when I was tipsy and tired, and it was three o’clock in the morning. He did alright at his studies at first, but it soon became evident that university just wasn’t for him.

I’m not quite sure what happened to my brother, but a number of factors – university stress, poor sleep, anxiety, signs of developing schizophrenia, and of course being away from home – combined in him to produce severe depression, anxiety and other mental health issues. To cut a long story short, my lovely aunt and I did our best to help him. We took him to the doctors, counsellors and fed him well. He withdrew from university and headed home to work and rest for awhile. But at home, John didn’t get the rest, support and medical attention he needed. I don’t want to blame anyone for his death, and I won’t go into specifics, but his death was entirely preventable.

On the 24th of September 2014, John died by suicide. He was only 18. He was my best friend, a gentle boy who saw the best in everyone. John was the boy who befriended the outsiders. He was the class clown. He was the kindest human being I knew.

I felt like I had somehow let him down. I was in Edinburgh at the time, two weeks into a student exchange. I was on the other side of the world. I thought he was doing ok – just a week earlier, we’d been having a pretty normal conversation on Facebook. I’d ignored his most recent request to Skype.

For a long time, I refused to acknowledge the true circumstances of my brother’s death. I buried the memory in the attic of my mind and desperately tried to distract myself. And then, when I too began to spiral downwards into that deep, dark pit of depression, I kept my mouth shut. I was too afraid to tell anyone that my hair was falling out in clumps, that I woke up each morning with a heavy weight on my chest, pushing me down into the mattress.

I was too ashamed to admit that I couldn’t sleep, that I was beginning to hear voices, or that secretly I longed for everything to just stop. I was on the brink of suicide myself, and it wasn’t until a friend confronted me with five simple words, that I realised I needed help. “Are you thinking about suicide?” she asked. I got the help I needed, and while I’m not 100% better, I am doing well, and I have a wonderful support system.

Focus on the happy memories:

I can’t ever forget the sad resolution to John’s life. life, but I can dwell on those funny, happy memories. So, here are a few:

When I was eight years old, we lived on a farm in Mangatangi. We had the most infuriating, useless chickens ever. They hardly ever laid eggs for us, and they weren’t affectionate in the slightest. John’s rooster was downright evil, and would attack us every time we left the house. However, one afternoon Andrew and I went to inspect the egg-boxes, only to find that there were twelve spotless, perfectly oval, creamy eggs nestled carefully within the straw. I was amazed. Our chickens had finally rewarded us! Andrew and I trotted home, crowing excitedly to Mum and Dad. It was only a few years ago that I found out my wily parents had enlisted John to hide a carton of eggs in our henhouse, in order to surprise us for once. He never breathed a word.

Throughout high school, I was incredibly straight laced and reserved. My rebellion was more of an intellectual one, rather than the traditional sex, drugs and rock’n’roll defiance of usual teenagers. To this end, I arrived at the ripe old age of 18 without ever having been to a party. My dear friend Sequoia decided to fix this, and so one evening I snuck out to my first party. It was ineffably strange. Inebriated teenagers were stumbling around in a muddy field, a decrepit old donkey was wandering around foraging for party snacks, and a cluster of tangle-haired hippies were hotboxing a caravan. I stood there in bemusement, watching the chaos unfold. And then, out of the corner of my eye, I saw my cheeky brother pull up on his bicycle. We made eye contact, and an unspoken agreement was made: I won’t tell if you don’t. We always looked out for each other. He was my best friend.

Finally, I was lucky enough to flat with John for a brief while down in Dunedin. It was the funniest, most infuriating time of my life. But John was always kind, sweet and gentle. Having moved on from the previously mentioned teetotal period, I would occasionally head out to town with my friends until the small hours of the morning. John would always leave his phone on in case I needed someone to walk me home. One night I called him at 3 in the morning. I was stuck in the centre of town, and didn’t want to walk through the dark, dank North East Valley by myself. Without complaining, my brother came to find me, skateboard under his arm. He placed me on the skateboard and towed me home, stopping off for refreshments on the way home. I will never forget how kind and caring John was, or how much fun it was to share a McFlurry with him, bumbling along the deserted roads of North Dunedin in the middle of the night.

So, to conclude:

It is the fear of losing more people to suicide that drives me forward. I am no longer ashamed of how my mind plays tricks on me, or the deficient levels of dopamine in my brain. Talking about suicide and mental health is a matter of life and death in New Zealand. Let’s start the conversation now.

I’d like to leave you with a Maori proverb that took on great significance to me after my brother died:

He aha te mea nu-nui o te ao

What is the most important thing in the world?

He tangata, he tangata, he tangata

It is the people, it is the people, it is the people

Mental Notes – Dunedin Fringe Review

On 16 March, I had the immense pleasure of watching the Suitcase Theatre perform Mental Notes as part of the Dunedin Fringe Festival.

Rarely have I encountered such an uplifting and touching take on mental health. Mental Notes, is at its heart, an exploration of mental health, a sustained conversation with many different voices. Over the course of an hour, sitting in the dark of the ArtSenta building, I was reminded that I am not alone in my mental illness.

Mental Notes comprises a collection of stories from the Dunedin community, all anonymous, but real. In the wake of horrifying statistics and impersonal, vague reassurances from medical authorities, it’s refreshing to hear from real people. I won’t lie – it was challenging at times, but I was reassured by the knowledge that members from Life Matters Suicide Prevention Trust were on hand for emotional support, should I need it. I also really appreciated the fact that the cast invited us to chat and drink tea with them afterwards.

The show began with an upbeat performance of the Rolling Stones’ Paint it Black, and a discussion of the fact that almost everyone we meet is hiding something: “Our facade is a carefully curated selection of traits.” We then dived into a discussion of trigger warnings, and the stigmas surrounding mental health. The conversation was by turns uplifting, and sobering, articulating a range of experiences and reminding the audience that mental illness impacts different people in different ways. For example, when the topic of labels was touched upon, one character argued that “You don’t have to be given a label to know who you are.” That indeed is one person’s truth, but we also heard from another character how they found a palpable sense of relief at being able to articulate just what was going on inside their head.

Throughout the performance, authentic and alarming statistics were interwoven with the spoken word, reminding the audience of the sheer number of people behind the voices. I was encouraged by the stories of coping mechanisms and hearty support systems. I especially appreciated the way I could relate to the places (such as St Clairs beach) mentioned in the performance. It added a degree of familiarity to the stories that made them even more real in my eyes.

Throughout the performance, each actor moved a suitcase around the simple stage space, constantly refiguring the area. This ever changing layout added dynamism to the performance, which was further explored in the scene about clinical trials of ketamine therapy. I really enjoyed the use of music and lights in this session, and the physical theatre was spellbinding, with actors writhing and manipulating the space in a vivid and eye-catching way.

I was also touched by the scene wherein a woman recounts the story of a toxic friendship, as she watches her close friend unravel and become psychotic. “The books say that you are not responsible for someone else’s happiness,” she says, but we all know that it’s hard to think about such matters in a purely logical and intellectual way. As someone who has struggled with being someone’s sole emotional support, I really related to this scene. 24/7 support of someone struggling with mental health is really exhausting. That’s why it’s important that we all have comprehensive support systems in place.

It was also fascinating learning about the history of “treatment” for mental health issues over the ages, from Martin Luther’s ignorant and worrisome perception of mental health, to the Dunedin Eugenics society in the early twentieth century. Think of lobotomies, electroshock therapy and the current furor over the issue of “overmedicating”, and you’ll realise that it’s a difficult road, getting help for mental health concerns.

Mental Notes ended with the song Forks and Spoons, a touching and funny ditty about life with an invisible illness.

Good morning universe, my eyes crack open slowly for the day
I am a spoonie, so I’m forced to live my life a certain way.
A spoonie is a person with an illness that you cannot see
And spoons are how we calculate our units of strength and energy
A spoonie wakes up with a single predetermined set of spoons
We can’t make more (like normies do) if we run out mid-afternoon.
Spoons deplete with struggles and activities, both work and fun
So spoonies try to keep some spoons aside to get the things that matter done
“Get up!” SPOON
“Make the bed!” SPOON!
“Quiet all the melancholy voices in my head!” SPOON!
“Reach up in the shower!” SPOON
“Reach down in the shower!” SPOON
“Leave the house” SPOON!
“Face the rain” SPOON!
“Go to work and don’t leave early again!” SPOON!
“Headache” SPOON!
“Making tea!” TEA SPOON!
“Sitting through an acquaintance telling you that all you need is yoga and a positive mindset!” SPOON!
“Digging that person’s shallow grave!” A SHOVEL!
When the final spoon is gone, we cannot move, or even talk
So if I save a spoon to give to you, I give a fork.
Mental Notes is a poignant and touching reminder of the folk behind the mental health statistics. I only wish it could be performed to wider audiences. It is a collection of tales that everyone needs to hear.

Written by Jean Balchin. Student at University of Otago.

A review of The Ripple Effect

On the 14 March I was fortunate enough to go to a screening of “Suicide: The Ripple Effect”, a feature length documentary film focusing on the devastating effects of suicide. I must admit, I wasn’t looking forward to the film. I expected to dissolve into tears, and to leave feeling dejected and miserable.

But Kevin Hines and his film crew actually reaffirmed a tremendously uplifting message, illustrating the positive ripple effects of advocacy, inspiration and hope that are helping millions heal & stay alive.
The film highlights the story of Kevin Hines, who at age 19, attempted to take his life by jumping from the Golden Gate Bridge. Today Kevin is a world-renowned mental health advocate, motivational speaker and author who travels the globe spreading his message of hope, recovery and wellness.

I think the most important thing that I took from the film was the important of sharing our stories of survival and recovery in order to bring hope to others. (I’ve said this all before, but good luck shutting me up now.) I’ve struggled with severe depression and anxiety for about five years now. When I first began falling into that horrid hole of despair, I didn’t think I’d be able to find a way out. But, thanks mostly to the love and support of my friends and family, I’m still alive today. What’s more, I’m happy, confident, and prepared for the future.
Often when we talk about mental health, we focus on the really sad and despairing stories of those we’ve lost. And that’s ok. But it’s also important to remember hope, and to cling to a sense of optimism for the future. It really does get better. Tonight I’d like to congratulate all of you who have made it through so much shit to be here today. I am so proud of you.

And remember, if you ever find yourself struggling, please do reach out. Help can always be found.

Written by Jean Balchin – Student at University of Otago

Let’s start the conversation now

Jean Balchin

Kia ora. My name is Jean and I’ve been involved with Life Matters Suicide Prevention Trust for a couple of years. I’d like to begin this blog by telling you a story about me and my brother John, who died by suicide three years ago.

I’m the oldest of nine children – Jean, John, Andrew, Will, Jill, Lucy, Peter, Rebecca and Jack. Together with my parents, we have enough kids for a soccer team, almost enough for five-aside rugby, and more than enough for a nervous breakdown.

My childhood was messy, chaotic, and full of love. I had my usual teenage angst, and rebellious phase, but nothing serious had ever really happened. I hadn’t known real sadness, depression or anxiety. I hadn’t yet been touched by suicide.

Naturally, I was always very protective of my brothers and sisters. That’s not to say I didn’t tease them. On my little brother Will’s first day at school, I convinced him that a tube of wasabi I had was green ice-cream. He ate a whole teaspoon and began to bawl. I ran away. Obviously, this was not my finest hour. But when it really mattered, we stuck together. Playground skirmishes would sometimes escalate into full-on clan wars if someone dared to pick a fight with one of my siblings. And when my brother John began to show signs of depression, I was worried.

Three years ago, I was a second year student at Otago University. I was living in a flat in North East Valley, and I thought it would be great fun if my brother John – the next one closest in age – would come flat with me. So he moved down, and for awhile, it was great fun. We would go to parties together, and he would put me on his skateboard, and tow me home when I was tipsy and tired, and it was three o’clock in the morning. He did alright at his studies at first, but it soon became evident that university just wasn’t for him.

I’m not quite sure what happened to my brother, but a number of factors – university stress, poor sleep, anxiety, signs of developing schizophrenia, and of course being away from home – combined in him to produce severe depression, anxiety and other mental health issues. To cut a long story short, my lovely aunt and I did our best to help him. We took him to the doctors, counsellors and fed him well. He withdrew from university and headed home to work and rest for awhile. But at home, John didn’t get the rest, support and medical attention he needed. I don’t want to blame anyone for his death, and I won’t go into specifics, but his death was entirely preventable.

On the 24th of September 2014, John died by suicide. He was only 18. He was my best friend, a gentle boy who saw the best in everyone. John was the boy who befriended the outsiders. He was the class clown. He was the kindest human being I knew.

I felt like I had somehow let him down. I was in Edinburgh at the time, two weeks into a student exchange. I was on the other side of the world. I thought he was doing ok – just a week earlier, we’d been having a pretty normal conversation on Facebook. I’d ignored his most recent request to Skype.

For a long time, I refused to acknowledge the true circumstances of my brother’s death. I buried the memory in the attic of my mind and desperately tried to distract myself. And then, when I too began to spiral downwards into that deep, dark pit of depression, I kept my mouth shut. I was too afraid to tell anyone that my hair was falling out in clumps, that I woke up each morning with a heavy weight on my chest, pushing me down into the mattress.

I was too ashamed to admit that I couldn’t sleep, that I was beginning to hear voices, or that secretly I longed for everything to just stop. I was on the brink of suicide myself, and it wasn’t until a friend confronted me with five simple words, that I realised I needed help. “Are you thinking about suicide?” she asked. I got the help I needed, and while I’m not 100% better, I am doing well, and I have a wonderful support system.

Focus on the happy memories:

I can’t ever forget the sad resolution to John’s life.  life, but I can dwell on those funny, happy memories. So, here are a few:

When I was eight years old, we lived on a farm in Mangatangi. We had the most infuriating, useless chickens ever. They hardly ever laid eggs for us, and they weren’t affectionate in the slightest. John’s rooster was downright evil, and would attack us every time we left the house. However, one afternoon Andrew and I went to inspect the egg-boxes, only to find that there were twelve spotless, perfectly oval, creamy eggs nestled carefully within the straw. I was amazed. Our chickens had finally rewarded us! Andrew and I trotted home, crowing excitedly to Mum and Dad. It was only a few years ago that I found out my wily parents had enlisted John to hide a carton of eggs in our henhouse, in order to surprise us for once. He never breathed a word.

Throughout high school, I was incredibly straight laced and reserved. My rebellion was more of an intellectual one, rather than the traditional sex, drugs and rock’n’roll defiance of usual teenagers. To this end, I arrived at the ripe old age of 18 without ever having been to a party. My dear friend Sequoia decided to fix this, and so one evening I snuck out to my first party. It was ineffably strange. Inebriated teenagers were stumbling around in a muddy field, a decrepit old donkey was wandering around foraging for party snacks, and a cluster of tangle-haired hippies were hotboxing a caravan. I stood there in bemusement, watching the chaos unfold. And then, out of the corner of my eye, I saw my cheeky brother pull up on his bicycle. We made eye contact, and an unspoken agreement was made: I won’t tell if you don’t. We always looked out for each other. He was my best friend.

Finally, I was lucky enough to flat with John for a brief while down in Dunedin. It was the funniest, most infuriating time of my life. But John was always kind, sweet and gentle. Having moved on from the previously mentioned teetotal period, I would occasionally head out to town with my friends until the small hours of the morning. John would always leave his phone on in case I needed someone to walk me home. One night I called him at 3 in the morning. I was stuck in the centre of town, and didn’t want to walk through the dark, dank North East Valley by myself. Without complaining, my brother came to find me, skateboard under his arm. He placed me on the skateboard and towed me home, stopping off for refreshments on the way home. I will never forget how kind and caring John was, or how much fun it was to share a McFlurry with him, bumbling along the deserted roads of North Dunedin in the middle of the night.

So, to conclude:

It is the fear of losing more people to suicide that drives me forward. I am no longer ashamed of how my mind plays tricks on me, or the deficient levels of dopamine in my brain. Talking about suicide and mental health is a matter of life and death in New Zealand. Let’s start the conversation now.

I’d like to leave you with a Maori proverb that took on great significance to me after my brother died:

He aha te mea nu-nui o te ao

What is the most important thing in the world?

He tangata, he tangata, he tangata

It is the people, it is the people, it is the people

Letter to Jacinda Ardern

 Corinda Taylor

Congratulations on becoming the new Labour Prime Minister of NZ.
From one woman to another.

Would you be comfortable to let your loved one use the public system the way it is now?

Recently we saw you cry in public when a mother told her story about how the system failed her daughter who died by suicide. When you shared that tender moment with that mother did you feel her pain and did you realise the gravity of the broken mental health system?

Yesterday I heard how someone had to wait 12 months in the public system to get counselling. Another said the wait with ACC counselling is 6 months. Another couldn’t be admitted due to lack of beds only to be discharged without a plan or any support in place. Another, after an attempt, was admitted but discharged again without a plan or any support in place. Another was told they were not acute enough to be under mental health services because they didn’t have a mental illness. Another was not followed up. Another was told to go to emergency services when unwell and when they did that they were told that they were not unwell enough. They feel they were told to come back when they are serious enough about taking their own life. Some never come back again……. The above happened in a 24 hour period in my life when people inform the Life Matters Suicide Prevention Trust of how they struggle to navigate the mental health system that is designed to not only silence us but also keep us away from care. This is like a war zone in a third world country. We deserve better.

Jacinda, you have given assurance to the relatives of suicide victims that their voices will be heard when your government reviews mental health services when you are elected. Unfortunately you have never promised an inquiry unlike what some people may believe. There is a big difference between a review and an inquiry.

Our waiting lists for good care are huge and people are dying whilst waiting for care. A review will not give us the results we need and our people will continue to die unless you really listen to the voices of our currently 47,000 strong signature petition begging for an inquiry into mental health services.

Today I plead with you to do what is right for every New Zealander.

From one woman to another.

Warm regards
Corinda Taylor (mother of Ross Taylor who died by suicide after he was let down by the individuals in the mental health system).

Mental Health Inquiry

 My son, Ross Taylor took his own life after he asked mental health services for help three times in the last weeks before he died.

 Our family begged the services for help yet our grave concerns were dismissed and ignored.  Ross was only 20 years old and even though he was in the high-risk age and gender group his pleas for help were ignored. It is not surprising that New Zealand has the highest youth suicide rate if people are treated like this.

No person should ever have to feel that suicide is their only option.

We need to provide better care.

Our mental health systems are failing our people and there are huge gaps. Despite our desperate and best efforts to ask for help from the services our pleas went unheeded. If my son was having a heart attack he would have received quality care however mental distress is often treated with less priority and with lack of empathy.

Please sign the petition for an urgent mental health inquiry for our new elected government to prioritize so that no person is turned away when in suicidal crisis.

We ask them to work together across all political parties and make the right decision for all New Zealanders.

I want an urgent inquiry into our mental health crisis so that no one else has to suffer like my son, Ross Taylor.

A mental health inquiry is needed so that we can see how many people are turned away from services, how many people have died by suicide after contact with services within 1 day, 1 week, 1 month, 3 months, 6 months, 9 months and 1 year. This inquiry needs to look at how many people have been discharged from services, often because they have missed their appointments due to being very unwell and then went on to take their own lives.

The public deserves to know how many people have simply been dropped from services or being told they don’t meet the criteria. None of the above information is gathered to identify what the problems are.

If we have this information we can make positive changes and lives will be saved.

The following to be implemented.

1.       Suicide prevention training for frontline staff to be mandated.
2.       DHB records to be electronic so that clinical information is readily available in a crisis.
3.       Zero suicide target in the health care system implemented.
4.       Increase primary health and GP funding.
5.       Commit to safe staffing.
6.       Independently investigate all serious adverse events (including attempts and self-inflicted deaths) of people who had contact with services up to 1 year after last contact.
7.       Independently investigate mental health services and give people with the lived experience an opportunity share how they and their families have been treated.
8.       Ensure that reporting of suicides by DHBs are mandated for up to a year and not voluntary for up to 28 days only.

Thanks very much for you support,

Corinda Taylor.

How a good diet and the right nutrients can benefit our mental health.

Brendon McIntosh

Kia Ora koutou, my name is Brendon McIntosh and I am a Community Pharmacist. I am very grateful to be asked by Corinda Taylor from the Life Matters Suicide Prevention Trust, to talk today about how a good diet and the right nutrients can benefit our mental health.

Now I know mental wellbeing is multi-factorial and there are a huge number of factors contributing to our outrageous suicide rates and rates of depression, but today I am just going to focus on some dietary things we can be doing to improve our mood.

So what would a Pharmacist know about diet and mood you may ask? Well we know a lot about biochemistry and specific human body systems including the nervous system. But for me personally, I also have a degree in Neuroscience, so I have studied the brain for 3 years and I have also completed postgraduate study in nutritional medicine so I have looked at the effects different nutrients have on our bodies and in turn, the effects our bodies have on these nutrients.

The effects our diet has on our mental health has been well documented and more and more research is coming out in support of certain foods that have a positive effect on our moods and those that can have a negative effect. Numerous studies on depressed people have shown that even minor adjustments to their diets such as eating less junk food and eating more nutrient-rich foods can lead to improvement in symptoms and depression scores.

So what are some nutrients we should be eating to help our mental wellness and what foods are these found in?

  • Selenium – This is important as our soils in New Zealand have low levels of selenium, which in turn means our food will have low levels. Low selenium has been linked to low mood. Foods to increase for selenium intake are whole grains, Brazil nuts, seafood and organ meats.
  • Vitamin D – This is the sunshine vitamin. There is a theory that our depression rates are so high due to our position relative to the sun. The same is true in countries like Sweden. It is highly recommended that kiwis supplement with Vitamin D over winter. Not only is it good for mood but has also been shown to help our immune systems.
  • Omega 3 – This is an essential fatty acid made up of EPA and DHA. The DHA is the part that’s good for brain health. A quality and environmentally conscious fish oil supplement is good for increasing our levels but ensure it is a reputable brand that the fish oil hasn’t been sitting in the Pharmacy window and been degraded by the sunlight. You can also increase omega 3 intake via food. Sardines are the best. You can also get it from salmon or tuna but beware that the bigger the fish the more risk of toxins such as mercury which have the opposite effects on our brain health. Some plants have good amounts of omega 3’s like flaxseed, hemp and chia seeds, also walnuts and almonds can be a good source.
  • Antioxidants – These include Vitamin C, Vitamin E and Beta Carotene. Antioxidants may help us deal with the stress associated with mood disorders. These can come from foods like kiwifruit, oranges, carrots, raw nuts and leafy greens. If you are going to supplement ensure they are in the correct form, especially the vitamin E as a cheap supplement can cause negative effects.
  • B vitamins – These are great for those with busy lifestyles. Important for energy production and stress management. Especially vitamin b12 and folate but the B’s work best all together so eating whole foods like eggs, meat, poultry and fish but also whole grains, leafy greens, fruit and nuts. Basically if you eat a varied diet you should get enough B’s but in times of high stress you may need to supplement with a quality B complex vitamin.
  • Zinc – Zinc is an essential trace element important for most reactions in our bodies. It has also been shown to increase effectiveness of antidepressants. Zinc can be found in oysters, beef and lamb or also in whole grains, chickpeas and cashew nuts.
  • Protein – lastly it is important we are eating enough high quality proteins, as these are the building blocks for life. This comes from foods like meat but plants also have good protein levels, especially pea or hemp.

The above are all nutrients and foods we can increase to improve our mood. There are also foods to avoid if we want to give our bodies the best chance of vitality.

  • Caffeine – This is hard for me to say, as I love long blacks. But for those with depression that has anxiety associated with it, it is important to try and limit stimulants such as caffeine.
  • Alcohol – Again another hard one to say. But we all know the consequences of excess alcohol consumption. I cut alcohol out of my life for 9 months once and the things I learnt about myself were very eye-opening, especially in social situations.
  • Refined foods – These are high in calories but low in nutrients and usually high in sugar, which can cause a crash and obviously affect a person’s mood. Do I need to say no Big Macs or Wikid Wings?
  • Processed oils – Like Safflower and corn oil, these are high in omega 6 which can contribute to inflammation – one theory on the cause of depression.

Lastly I want to touch on our gut health. 70% of our feel-good hormone serotonin is made in our gut. This is the gut-brain connection via our microbiome. Increasing fermented foods like low-fat, low sugar yoghurt, Kim-chi and sauerkraut are good for general gut health but if you are taking certain medications or have a poor diet then I highly recommend a strain-specific probiotic that can help grow the number of good bacteria in our gut and help with depressive symptoms. Our microbiome can be improved with a diet that includes all the above nutrients I just talked about.

So to summarise, here are some foods and how many servings you should have to help improve mood. Some people would call this a happy meal:
1. Whole grains – 5 servings a day
2. Veges – 6 servings a day
3. Fruit – 3/day
4. Legumes – 3-4 servings per week
5. Low-fat unsweetened dairy – 2 servings a day
6. Raw nuts – 1 serving a day
7. Fish – at least 2 servings per week
8. Lean red meats – 3 to 4 servings per week
9. Chicken – 2 to 3 servings per week
10. Eggs – maximum of 6 per week
11. Olive/coconut oil – 3 teaspoons per day

And at the very least, please do you best to reduce intake of:
1. Sweets
2. Refined cereals
3. Fried foods
4. Fast food
5. Processed meat
6. Sugary drinks

Thanks for listening, if you have any questions you can add SnapChemist on Snapchat or follow SnapChemist on Facebook or Instagram and send Brendon McIntosh a direct message.

Huge thanks to Brendon for this very informative messsage, Keep following our page as we will bring you more on good healthy diets and lifestyles.

 

I lost my son

Corinda Taylor
I woke up this morning and reality hit me like a cold hard slap in the face.

I lost my son to suicide.

Not only did we lose our beautiful boy to suicide but we have kept relatively silent about it for four years. This is my first blog about the terrifying experience that no parent wants to have. I have kept silent because of the ongoing investigation into the care that my son, Ross Taylor, received at the hands of his psychiatrist and nurses.

This week the Mental Health Commissioner released his report after more than four long excruciating years after my son’s suicide.  The Southern District Health Board and the consultant psychiatrist Dr C  failed to provide services to Ross Taylor with reasonable care and skill and breached Right 4(1) of the Health and Disability Code. The independent psychiatrist who did the investigation for the commissioner stated that in her opinion the quality of clinical care that Ross received during the last three months of his life is a significant deviation from expected clinical standards. They have validated our complaint that the individuals concerned and the services failed our son.

This week our story also went public in New Zealand. We are extremely private people but felt compelled to speak up for the sake of current and future users of the mental health system.

I will be blogging regularly about our experience and how we were stonewalled repeatedly by the Southern District Health Board and clinicians before and after Ross died and how we battled to get positive changes to happen to ensure that nobody suffers a similar fate.

This week showed us who were prepared to support us to bring about positive changes. People from agencies have shown support for what they described and I quote “unethical conduct”, “neglect” and many more harder words that cannot be mentioned here. It has brought disgrace to the medical profession and tarred many good professionals with the same brush unfortunately. That was not our intention.

Some have said that they admired how I have channeled my energy into holding people accountable. I do not want admiration and I do not want sympathy. I want to see change.

I have been inundated with stories by many parents who have experienced similar tragedies and shared with me their pain and the battles to navigate a complicated mental health system. They also shared how families have been treated with such disdain and contempt with some trespassed or banned from services after trying to get the best care possible for their loved ones. I now realize that what happened to us is a common theme and only the tip of the iceberg. Let’s lance this sore and expose it for what it is.

Many have been unable to get fair investigations happen. They expressed support for our cause but stated that they did not have the strength to do what we did.

We would like to see more support for people and their families when in distress and we would also like to see good postvention support put in place. We have had no support offered to us by the Southern District Health Board during the four year investigation that would have paralyzed most people. This needs to change.

My hope is that our case has paved the way for many others to bring about change and hope. Nobody should have to beg services to help our loved ones in distress. Nobody should have to go to the lengths like we did to get a fair hearing to expose the truth.

Better systems, healthy communities and workplaces with committed health care professionals will result in safer and more effective outcomes with less people in crisis.

Corinda Taylor mother of Ross Taylor